“The hard bits I suppose are when (child’s name) has to undergo medical bits and pieces like nasal brushings and things that he doesn’t want to do because either it hurts or it’s just an invasion of his privacy” (father 2)
The worst time for parents was when their child was hospitalized. They described it as a draining time, full of emotions and anxiety where they felt out of control. Not being able to be together as a family and care for any additional children had an emotional impact on the parent.