“I find it quite difficult because it is a reminder I think of
how serious his condition is and I struggle with going ……it would
just bring up a lot of emotions and I’d get really upset and I think I
get really fearful even though they are a really….they’re really
supportive …….. having a whole team of people was frightened me at
first and ….uhm…..it…because it made everything so…..I mean it
was very serious to me anyway….but it just….made it even more
serious…and more scary but….I knew that they were there for ….for
a good reason, I did not want my son to have all this….need, all these
people” (mother 7)
It could also be quite stressful due to the emotional/behavioural
response of the child. As mentioned by this mother, parents needed to
prepare their child for the visit and often rewarded them for compliant
behaviour: