Intervention, outcome and follow-up
Five patients had surgical excision, comprising excision biopsies for 4
plexiform neurofibromas of the lid and neurosurgery for the excision of
an intracranial, intraventricular glioma. All patients were successfully
followed up for at least 6 weeks postoperatively. Surgery involved the
ophthalmologist alone or the ophthalmologist as a member of an
interdisciplinary surgical team and neurosurgeons alone in 1 case. A
29-year-old male with a plexiform spinal neurofibroma, had successful
surgical resection and physiotherapy. He was managed in a
multidisciplinary team. At least 6 cases recommended for
neuro-radiological imaging and surgery, were unable to have surgery and
were subsequently lost to follow-up.