Floor and ceiling effects
Overall, 43.8 % (n=700) of all replies was ‘0=never’ and 5.5 % (n=88) was ‘4=always’. The lowest score (the best QoL score) of the whole group was 1 in 1 patient. The highest score (the lowest QoL) was 89 in 1 patient. The 25th and 75thpercentile of the QoL global was 21 and 51.5. The questions most frequently answered as ‘often’ and ‘always’ (≥ 30 % of the entire group) were related to cough, difficulty in usual activities, tired, fear of illness, becoming infected. The questions answered as ‘never’ were about fear of death, troubled by other patients, limited by cough, contagious by ≥ 70 % of the entire group