REFERENCES
1. Jemal A, Ward EM, Johnson CJ, et al. Annual Report to the Nation on
the Status of Cancer, 1975-2014, Featuring Survival. J Natl Cancer
Inst. 2017;109(9):djx030.
2. Landier W, Skinner R, Wallace WH, et al. Surveillance for Late
Effects in Childhood Cancer Survivors. Journal of clinical
oncology : official journal of the American Society of Clinical
Oncology. 2018;36(21):2216-2222.
3. Michel G, Mulder RL, van der Pal HJH, et al. Evidence-based
recommendations for the organization of long-term follow-up care for
childhood and adolescent cancer survivors: a report from the
PanCareSurFup Guidelines Working Group. J Cancer Surviv. 2019.
4. Wallace WH, Blacklay A, Eiser C, et al. Developing strategies for
long term follow up of survivors of childhood cancer. BMJ
(Clinical research ed). 2001;323(7307):271-274.
5. Edgar AB, Duffin K, Borthwick S, Marciniak-Stepak P, Wallace WH. Can
intensity of long-term follow-up for survivors of childhood and teenage
cancer be determined by therapy-based risk stratification? BMJ
Open. 2013;3(8).
6. Frobisher C, Glaser A, Levitt GA, et al. Risk stratification of
childhood cancer survivors necessary for evidence-based clinical
long-term follow-up. Br J Cancer. 2017;117(11):1723-1731.
7. Moslehi JJ. Cardiovascular Toxic Effects of Targeted Cancer
Therapies. New England Journal of Medicine.2016;375(15):1457-1467.
8. Wanchoo R, Karam S, Uppal NN, et al. Adverse Renal Effects of Immune
Checkpoint Inhibitors: A Narrative Review. Am J Nephrol.2017;45(2):160-169.
9. Byun DJ, Wolchok JD, Rosenberg LM, Girotra M. Cancer immunotherapy -
immune checkpoint blockade and associated endocrinopathies. Nat
Rev Endocrinol. 2017;13(4):195-207.
10. Chow EJ, Antal Z, Constine LS, et al. New Agents, Emerging Late
Effects, and the Development of Precision Survivorship. Journal of
Clinical Oncology. 2018;36(21):2231-2240.
11. Group CsO. Long-Term Follow-Up Guidelines for Survivors of
Childhood, Adolescent and Young Adult Cancers, Version 5.0. Monrovia,
CA2018.
12. Kremer LCM, Mulder RL, Oeffinger KC, et al. A worldwide
collaboration to harmonize guidelines for the long-term follow-up of
childhood and young adult cancer survivors: a report from the
International Late Effects of Childhood Cancer Guideline Harmonization
Group. Pediatric blood & cancer. 2013;60(4):543-549.
13. Armenian SH, Hudson MM, Mulder RL, et al. Recommendations for
cardiomyopathy surveillance for survivors of childhood cancer: a report
from the International Late Effects of Childhood Cancer Guideline
Harmonization Group. The Lancet Oncology. 2015;16(3):e123-e136.
14. Mulder RL, Kremer LCM, Hudson MM, et al. Recommendations for breast
cancer surveillance for female survivors of childhood, adolescent, and
young adult cancer given chest radiation: a report from the
International Late Effects of Childhood Cancer Guideline Harmonization
Group. The Lancet Oncology. 2013;14(13):e621-e629.
15. Skinner R, Mulder RL, Kremer LC, et al. Recommendations for
gonadotoxicity surveillance in male childhood, adolescent, and young
adult cancer survivors: a report from the International Late Effects of
Childhood Cancer Guideline Harmonization Group in collaboration with the
PanCareSurFup Consortium. The Lancet Oncology.2017;18(2):e75-e90.
16. Dorp Wv, Mulder RL, Kremer LCM, et al. Recommendations for Premature
Ovarian Insufficiency Surveillance for Female Survivors of Childhood,
Adolescent, and Young Adult Cancer: A Report From the International Late
Effects of Childhood Cancer Guideline Harmonization Group in
Collaboration With the PanCareSurFup Consortium. Journal of
Clinical Oncology. 2016;34(28):3440-3450.
17. Clement SC, Kremer LCM, Verburg FA, et al. Balancing the benefits
and harms of thyroid cancer surveillance in survivors of Childhood,
adolescent and young adult cancer: Recommendations from the
international Late Effects of Childhood Cancer Guideline Harmonization
Group in collaboration with the PanCareSurFup Consortium. Cancer
Treat Rev. 2018;63:28-39.
18. Clemens E, van den Heuvel-Eibrink MM, Mulder RL, et al.
Recommendations for ototoxicity surveillance for childhood, adolescent,
and young adult cancer survivors: a report from the International Late
Effects of Childhood Cancer Guideline Harmonization Group in
collaboration with the PanCare Consortium. The Lancet Oncology.2019;20(1):e29-e41.
19. Robison LL, Armstrong GT, Boice JD, et al. The Childhood Cancer
Survivor Study: a National Cancer Institute-supported resource for
outcome and intervention research. Journal of clinical oncology :
official journal of the American Society of Clinical Oncology.2009;27(14):2308-2318.
20. Clark RA, Mostoufi-Moab S, Yasui Y, et al. Predicting acute ovarian
failure in female survivors of childhood cancer: a cohort study in the
Childhood Cancer Survivor Study (CCSS) and the St Jude Lifetime Cohort
(SJLIFE). The Lancet Oncology. 2020;21(3):436-445.
21. Kovalchik SA, Ronckers CM, Veiga LH, et al. Absolute risk prediction
of second primary thyroid cancer among 5-year survivors of childhood
cancer. Journal of clinical oncology : official journal of the
American Society of Clinical Oncology. 2013;31(1):119-127.
22. Chow EJ, Chen Y, Hudson MM, et al. Prediction of Ischemic Heart
Disease and Stroke in Survivors of Childhood Cancer. Journal of
clinical oncology : official journal of the American Society of Clinical
Oncology. 2018;36(1):44-52.
23. Chow EJ, Chen Y, Kremer LC, et al. Individual prediction of heart
failure among childhood cancer survivors. Journal of clinical
oncology : official journal of the American Society of Clinical
Oncology. 2015;33(5):394-402.
24. Signorelli C, Wakefield CE, Fardell JE, et al. The impact of
long-term follow-up care for childhood cancer survivors: A systematic
review. Crit Rev Oncol Hematol. 2017;114:131-138.
25. May L, Schwartz DD, Frugé E, et al. Predictors of Suboptimal
Follow-up in Pediatric Cancer Survivors. Journal of pediatric
hematology/oncology. 2017;39(3):e143-e149.
26. Hashibe M, Kirchhoff AC, Kepka D, et al. Disparities in cancer
survival and incidence by metropolitan versus rural residence in Utah.Cancer Med. 2018;7(4):1490-1497.
27. Singh GK, Williams SD, Siahpush M, Mulhollen A. Socioeconomic,
Rural-Urban, and Racial Inequalities in US Cancer Mortality: Part I-All
Cancers and Lung Cancer and Part II-Colorectal, Prostate, Breast, and
Cervical Cancers. J Cancer Epidemiol. 2011;2011:107497-107497.
28. Weaver KE, Geiger AM, Lu L, Case LD. Rural-urban disparities in
health status among US cancer survivors. Cancer.2013;119(5):1050-1057.
29. Zahnd WE, Davis MM, Rotter JS, et al. Rural-urban differences in
financial burden among cancer survivors: an analysis of a nationally
representative survey. Supportive care in cancer : official
journal of the Multinational Association of Supportive Care in Cancer.2019;27(12):4779-4786.
30. Walling EB, Fiala M, Connolly A, Drevenak A, Gehlert S. Challenges
Associated With Living Remotely From a Pediatric Cancer Center: A
Qualitative Study. J Oncol Pract. 2019;15(3):e219-e229.
31. Fluchel MN, Kirchhoff AC, Bodson J, et al. Geography and the burden
of care in pediatric cancers. Pediatric blood & cancer.2014;61(11):1918-1924.
32. Alvarez E, Keegan T, Johnston EE, et al. Adolescent and young adult
oncology patients: Disparities in access to specialized cancer centers.Cancer. 2017;123(13):2516-2523.
33. Boffa DJ, Rosen JE, Mallin K, et al. Using the National Cancer
Database for Outcomes Research: A Review. JAMA Oncology.2017;3(12):1722-1728.
34. Steliarova-Foucher E, Stiller C, Lacour B, Kaatsch P. International
Classification of Childhood Cancer, third edition. Cancer.2005;103(7):1457-1467.
35. Cancer Co. Facility Oncology Registry Data Standards 2016. In:
American College of Surgeons; 2016.
36. Group CsO. Children’s Oncology Group Locations.
https://www.childrensoncologygroup.org/index.php/locations/.
Published 2020. Accessed August 5, 2020.
37. Kind AJH, Buckingham WR. Making Neighborhood-Disadvantage Metrics
Accessible - The Neighborhood Atlas. N Engl J Med.2018;378(26):2456-2458.
38. Singh GK. Area deprivation and widening inequalities in US
mortality, 1969-1998. Am J Public Health. 2003;93(7):1137-1143.
39. Lantos PM, Maradiaga-Panayotti G, Barber X, et al. Geographic and
Racial Disparities in Infant Hearing Loss. Otolaryngol Head Neck
Surg. 2018:194599818803305.
40. Durfey SNM, Kind AJH, Buckingham WR, DuGoff EH, Trivedi AN.
Neighborhood disadvantage and chronic disease management. Health
Serv Res. 2019;54 Suppl 1(Suppl 1):206-216.
41. Nekhlyudov L, Mollica MA, Jacobsen PB, Mayer DK, Shulman LN, Geiger
AM. Developing a Quality of Cancer Survivorship Care Framework:
Implications for Clinical Care, Research, and Policy. JNCI:
Journal of the National Cancer Institute. 2019;111(11):1120-1130.
42. Casillas J, Oeffinger KC, Hudson MM, et al. Identifying Predictors
of Longitudinal Decline in the Level of Medical Care Received by Adult
Survivors of Childhood Cancer: A Report from the Childhood Cancer
Survivor Study. Health Serv Res. 2015;50(4):1021-1042.
43. Oeffinger KC, Mertens AC, Sklar CA, et al. Chronic health conditions
in adult survivors of childhood cancer. N Engl J Med.2006;355(15):1572-1582.
44. Welch JJG, Kenney LB, Hirway P, et al. Understanding predictors of
continued long-term pediatric cancer care across the region: A report
from the Consortium for New England Childhood Cancer Survivors.Pediatr Blood Cancer. 2017;64(10).
45. Eiser C, Absolom K, Greenfield D, et al. Follow-up after childhood
cancer: evaluation of a three-level model. Eur J Cancer.2006;42(18):3186-3190.
46. Bates JE, Howell RM, Liu Q, et al. Therapy-Related Cardiac Risk in
Childhood Cancer Survivors: An Analysis of the Childhood Cancer Survivor
Study. Journal of Clinical Oncology. 2019;37(13):1090-1101.
47. Hudson MM, Neglia JP, Woods WG, et al. Lessons from the past:
Opportunities to improve childhood cancer survivor care through outcomes
investigations of historical therapeutic approaches for pediatric
hematological malignancies. Pediatric Blood & Cancer.2012;58(3):334-343.
48. Gibson TM, Mostoufi-Moab S, Stratton KL, et al. Temporal patterns in
the risk of chronic health conditions in survivors of childhood cancer
diagnosed 1970-99: a report from the Childhood Cancer Survivor Study
cohort. Lancet Oncol. 2018;19(12):1590-1601.
49. Shavers VL. Measurement of socioeconomic status in health
disparities research. J Natl Med Assoc. 2007;99(9):1013-1023.
50. Cheng TL, Goodman E. Race, Ethnicity, and Socioeconomic Status in
Research on Child Health. Pediatrics. 2015;135(1):e225-e237.
51. Kehm RD, Spector LG, Poynter JN, Vock DM, Altekruse SF, Osypuk TL.
Does socioeconomic status account for racial and ethnic disparities in
childhood cancer survival? Cancer. 2018;124(20):4090-4097.
52. Jaffee EM, Dang CV, Agus DB, et al. Future cancer research
priorities in the USA: a Lancet Oncology Commission. The Lancet
Oncology. 2017;18(11):e653-e706.
53. Institute NC. Childhood Cancer Data Initiative.
https://www.cancer.gov/research/areas/childhood/childhood-cancer-data-initiative.
Accessed March 22, 2020.
Data available on request due to privacy/ethical restrictions: The data
that support the findings of this study are available on request from
the corresponding author. The data are not publicly available due to
privacy or ethical restrictions.