“It’s complicated”: Carer perspectives on causes of eating disorders
in family members.
Abstract
Objective: This qualitative study investigated perspectives on
causes of eating disorders as experienced by those caring for affected
individuals with an eating disorder in New Zealand. Method:
Participants were nine carers of affected individuals, recruited from an
online survey, who consented to semi-structured qualitative interviews.
Inductive thematic analysis was undertaken to identify themes from the
data. Results: The overall theme informed by the data was ‘It’s
complicated’, reflecting carer perspectives that eating disorder causes
were complex and multifactorial. This theme was supported by sub-themes
of; ‘it’s like Swiss cheese’; ‘it came out of the blue’ and ‘in
hindsight maybe…’. Most participants indicated potential eating
disorder causes had not been formally explored with treatment teams,
although carers had reflected on possible causality across the treatment
journey. Conclusion: All participants expressed uncertainty
when reflecting on what factor(s) may have caused an eating disorder in
their family member. Participants reflected that causes were likely a
complex combination of environmental, social, psychological and
biological influences. Future research would benefit from data analysis
of dyads of carers and affected individuals who identify significant
recovery from the eating disorder, in order to reflect back upon
possible causes without the demands of treatment or continuing eating
disorder symptomatology.